• The cancer experience : perceptions of surviving siblings

      Aamodt, Agnes; Burlington, Katherine; Aamodt, Agnes; Young, Katherine; Farrell, Fran; Iles, Penny (The University of Arizona., 1980)
      The purpose of this study was to analyze the views of four surviving sibling informants in attempt to identify commonalities, or themes, that are representative of how the collective group views the cancer experience in their lives. Study informants were of the pre-adolescent and adolescent age groups. A conceptual framework is offered wherein the following concepts are presented: the culture of surviving siblings; cancer as a chronic life-threatening illness; altered family dynamics; and survival. Also discussed in this thesis are ethnography as an exploratory research design and the ethnographic interview as a data collection technique. Five cultural themes derived from this study are discussed: (1) there are lots of feelings; (2) things that make it better; (3) talking helps; (4) the importance of knowing; and (5) changes in relationships. Summary and conclusions are offered with recommendations for further research and practice. In general, study findings revealed that pre-adolescent and adolescent children are deeply affected by the illness and death of a sibling. Informants expressed a great need to be involved and informed throughout the cancer event in their family. It is therefore vitally important that the views of healthy siblings be considered in the care and treatment of families with a child who has cancer.
    • The child's view of the cystic fibrosis clinic experience : an ethnographic study

      Aamodt, Agnes; Gould, Lola Jean Case (The University of Arizona., 1982)
      This thesis is an ethnographic study of early school-age children with cystic fibrosis to determine the child's view of the cystic fibrosis clinic experience. Data were collected utilizing the protocol of the ethnographic interview, which were conducted with four early school-age children with cystic fibrosis. Each child was interviewed four times for a total of 16 interviews. Tape recordings of the interviews were transcribed and analyzed. Seven culturally relevant domains were analyzed, kinds of things that happen on a clinic visit, kinds of things seen on a clinic visit, kinds of people seen on a clinic visit, reasons for going on a clinic visit, ways of feeling about the clinic, kinds of things done to get ready to go to the clinic, and kinds of things done after a clinic visit. Cultural themes identified were: getting things done to my body, doctors and nurses do things to my body yet they are still my friends, waiting and getting- bored, sometimes like it--sometimes I don't, seeing friends, cystic fibrosis means my lungs are sick--having wheezes, crackles, phlegm, and coughing, and getting medicine. The view of the early school-age child with cystic fibrosis and recommendations for the practicing nurse were included. Use of the ethnographic interview for further research was suggested, and recommendations for further research and practice were included.
    • Health beliefs of obese school age children

      Aamodt, Agnes; Vellucci, Gayle Marie; Aamodt, Agnes; Young, Katherine; Mischel, Merle (The University of Arizona., 1981)
      This exploratory study investigated the cultural knowledge which informs the behaviors of obese school age females to adhere to restricted calorie diet plans. Ethnographic interviews were conducted with three mildly obese females ages 10 years, 11 years and 12 years. The data provided by the informants was organized into domains of meaning, dimensions of contrast, and cultural themes. Two cultural themes identified from the data were "I control" and "I want to feel good about myself." Recommendations for care of obese school age children based on the findings of this investigation were: 1) care plan development should include the child as a co-developer; 2) elements which enhance the child's sense of self-esteem should be included into the care plan.
    • The lumbar puncture : perceptions of leukemic children

      Aamodt, Agnes; Dunscomb, Denise Renee; Aamodt, Agnes A.; Young, Katherine J.; Farrell, Fran Z. (The University of Arizona., 1982)
      This thesis of a leukemic child's view of a lumbar puncture experience explored the question: What cultural knowledge informs the behavior of leukemic children experiencing a lumbar puncture. Data collection followed the ethnographic interview technique (Spradley, 1979). Four informants were individually interviewed four times. Data was analyzed after each interview and presented for verification by the informant. Seven culturally relevant domains were analyzed and include: "Parts of spinal tap process," "Kinds of people doing spinal tap with me," "Characteristics of the hurting experience," "Things that help during spinal tap," "Attributes of things I think about," "Kinds of spinal taps," and "Things to tell people." Domain analysis revealed six cultural themes: "Get a good doctor," "We don't like surprises," Eight-year-old boys need their parents, Getting my mind on other things, I need to "hold on," and You can't see behind your back. Recommendations for care of leukemic children experiencing lumbar punctures were suggested along with recommendations for further research.