• Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families: "I'm Tired, Overwhelmed, and Feel Like I'm Failing as a Mother"

      Capozza, Korey; Gadd, Hayley; Kelley, Keri; Russell, Shannon; Shi, Vivian; Schwartz, Alan; Univ Arizona, Dept Med, Div Dermatol (LIPPINCOTT WILLIAMS & WILKINS, 2020-05-01)
      Background The impact of pediatric atopic dermatitis (AD) on families is largely hidden from view, and AD is commonly misunderstood as a minor skin condition. Few studies have examined the full burden of AD from the family perspective. Objective The aim of the study was to assess the burden of AD on children and families using a caregiver-centered survey. Methods A 72-item anonymous online survey was posted on social media sites targeted to or composed of parents of children with AD. It explored the following 9 domains of impact: sleep, social isolation, time requirements, life decisions, family relationship dynamics, energy/fatigue, mental health impacts, and unmet treatment needs. Atopic dermatitis severity was reported by respondents using the Patient-Oriented Eczema Measure. Statistical analyses were conducted using R 3.6.0. Results Two hundred thirty-five individuals completed the survey during the 1-month period that it was promoted via social media. Caregivers reported frequent sleep disturbance, exhaustion, worry, and social isolation related to their child's AD. Conclusions Results highlight the need for psychosocial support and respite care for caregivers of children with AD.