Factors Affecting Follow‐Up Care in Hodgkin’s Lymphoma Survivors

Abstract

As research into the treatment of cancers improves patient’s chances for survival, the number of cancer survivors continues to increase. These patients are often treated with chemotherapy and radiation regimens that can increase their risk for cancers and other complications such as heart disease later on. Patients with Hodgkin’s lymphoma tend to be younger than patients with other cancers. Current treatment regimens lead to cures in many Hodgkin’s lymphoma patients with many long term survivors. However, these treatments place survivors at risk for numerous complications, most importantly other cancers and heart disease. Organizations such as the American Cancer Society recommend regular screening and surveillance by a patient’s doctor to detect these potential complications. To assess the factors that affect a patient’s follow‐up care we sent a survey to 365 Hodgkin’s Lymphoma survivors in Arizona and asked them about their specific follow‐up care. The survivors were identified using the Arizona Cancer registry, and 49 (13.4%) responded to our survey. However, of the 365 letter invitations that were sent out, 118 were returned undeliverable leading to a corrected response rate of 19.8%. Of the respondents 93% reported they were getting follow up care. We also looked at patient satisfaction with their care as a second outcome, 34 (72.3%) of the patients stated that they were strongly satisfied with their follow‐ up care. In order to assess physician‐patient communication, we asked patients if they had received a written follow‐up care plan. Of the respondents to this question, 14 (29.7%) noted that they had received a written follow up care plan. These two outcomes were stratified to various demographic factors (age, gender, education status, etc.) to determine if any of these caused a statistically significant difference in a patient’s satisfaction or whether or not they had received a written follow‐up plan. Due to the low number of responders, no statistically significant difference was found. Future studies are needed to further determine whether or not these sorts of demographic factors play a significant role but we believe studies like this are important as cancer survivorship continues to increase.