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    Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers

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    Name:
    Halpern_Caregiver_Burden_Scale ...
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    Description:
    Final Accepted Manuscript
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    Author
    Halpern, Michael T.
    Fiero, Mallorie H.
    Bell, Melanie L.
    Affiliation
    Epidemiology and Biostatistics Mel and Enid Zuckerman College of Public Health
    Issue Date
    2017-02-16
    Keywords
    Cancer
    Caregivers
    Social support
    Factor analysis
    Interpersonal relations
    
    Metadata
    Show full item record
    Publisher
    SPRINGER
    Citation
    Impact of caregiver activities and social supports on multidimensional caregiver burden: analyses from nationally-representative surveys of cancer patients and their caregivers 2017, 26 (6):1587 Quality of Life Research
    Journal
    Quality of Life Research
    Rights
    © Springer International Publishing Switzerland 2017.
    Collection Information
    This item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at repository@u.library.arizona.edu.
    Abstract
    Informal caregivers of individuals with cancer may experience substantial burdens. To develop interventions to support these caregivers, it is crucial to quantify and understand the domains of burdens potentially experienced by caregivers and factors contributing to each domain. Using data from two national surveys, the National Survey of Caregiving (NSOC) linked to the National Health and Aging Trends Survey (NHATS), we identified all participants in the NHATS diagnosed with cancer who had a caregiver participating in the NSOC. Guided by a theoretical model, twenty-two items in the NSOC related to caregiver health, mood and outlook were included in factor analysis to develop scales capturing domains of burden. Multivariable regression analyses examined whether activities performed by caregivers and supports for caregivers were associated with these burden scales. Analysis of responses from 373 caregivers of cancer patients identified three scales: emotional burden; psychological burden; and relationship with the patient. Providing assistance managing medical care was associated with increased emotional and psychological burden, while assistance with non-medical issues increased psychological burden and worsened relationships with patients. Caregiver provision of direct patient care activities was also associated with increased burden but improved relationships with patients. Use of caregiver supports showed mixed associations with burden. Using a nationally-representative sample of cancer patients and their caregivers and brief publicly-available survey questions, we present three scales addressing different aspects of caregiver burden that are responsive to caregiver activities and social supports. This may assist in developing and evaluating intervention to decrease caregiver burden.
    Note
    12 month embargo; First Online: 16 February 2017
    ISSN
    0962-9343
    1573-2649
    DOI
    10.1007/s11136-017-1505-9
    Version
    Final accepted manuscript
    Additional Links
    http://link.springer.com/10.1007/s11136-017-1505-9
    ae974a485f413a2113503eed53cd6c53
    10.1007/s11136-017-1505-9
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