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    The essential structure of the lived experience of the caregiver for the person with dementia at mealtime in the home setting

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    Author
    Dukes, Cathy Lu
    Issue Date
    2000
    Keywords
    Caregivers.
    Adaptation, Psychological.
    Dementia.
    Eating.
    Feeding Behavior.
    Menu Planning.
    Advisor
    Haase, Joan E.
    
    Metadata
    Show full item record
    Publisher
    The University of Arizona.
    Rights
    Copyright © is held by the author. Digital access to this material is made possible by the University Libraries, University of Arizona. Further transmission, reproduction or presentation (such as public display or performance) of protected items is prohibited except with permission of the author.
    Abstract
    Caring for a loved one with dementia is a complex experience. The relentless nature of 24 hour care giving responsibility for the person with dementia, while observing the progressive loss of cognitive and functional abilities and even change in personality itself, can be overwhelming. The progressive loss of behaviors observed in persons with dementia includes alterations in eating habits and the ability to feed oneself. The ritual of giving and accepting of food involves both the efforts of the caregiver in meeting the fundamental nutritional needs of the person with dementia, as well as serving as a social interaction between the two. The purpose of this phenomenological study was to provide a full, rich description of the experience of the caregiver of the person with dementia at mealtime in the home setting. Through a deeper understanding of the mealtime experience from the perspective of the caregiver, nurses will be able to provide appropriate, sensitive interventions to support those afflicted with dementia and those striving to care for them. In this study three family caregivers participated in audiotaped interviews describing their experience feeding the person with dementia at home. Four theme categories were identified by phenomenological data analysis of the interviews. These were: (1) Food Preserves Life; (2) It Gnaws At You; (3) Slipping Away; (4) Being Alone In It. These categories illuminate the essential structure of this experience for caregivers who struggle on a daily basis to nourish and protect their loved ones who suffer the ongoing deterioration of dementia.
    Type
    text
    Thesis-Reproduction (electronic)
    Degree Name
    M.S.
    Degree Level
    masters
    Degree Program
    Graduate College
    Nursing
    Degree Grantor
    University of Arizona
    Collections
    Master's Theses

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