Exploring end-of-life interaction in dyads of parents and adult children: a protocol for a mixed-methods study
AffiliationUniv Arizona, Dept Psychol
Health services research
MetadataShow full item record
PublisherBIOMED CENTRAL LTD
CitationStiel, S., Stelzer, E. M., Schneider, N., & Herbst, F. A. (2018). Exploring end-of-life interaction in dyads of parents and adult children: a protocol for a mixed-methods study. BMC palliative care, 17(1), 68.
JournalBMC PALLIATIVE CARE
Rights© The Author(s). 2018. This article is distributed under the terms of the Creative Commons Attribution 4.0 International License.
Collection InformationThis item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at firstname.lastname@example.org.
AbstractBackground: A considerable number of terminally-ill adult children are outlived by at least one parent and receive palliative care prior to their death. At the same time, adult children continue to be confronted with their parents' terminal illnesses and end-of-life situations. The current study explores the specifics of dyadic interaction at the end of life between a) adult children suffering from a life-threatening disease and their parents, and b) terminally ill parents and their adult children. Methods: This prospective observational study aims at filling the existing gap on adult child-parent interaction specifics at the end of life using an exploratory mixed-methods framework. The mixed-methods framework combines a qualitative face-to face interview and quantitative self-report questionnaires to study the topic at hand. The qualitative interview will focus on experiences, expectations, and wishes with regard to dyadic communication, information about illness and prognosis, expressed and perceived burden and support as well as caregiving role at the end of life. The questionnaires will cover socio-demographics, loneliness, attachment style, social support, and emotional closeness. Discussion: The research group is currently adjusting a semi-structured interview guide and questionnaire instructions based on the results of a multiprofessional scientific advisory board meeting (Jan. 2018). In a next step, and prior to qualitative and quantitative data collection, the questionnaires will be piloted on patients and their family members in a palliative care setting. The main expected results are i) a description of the specifics of the interaction within and between both dyads, ii) the development of hypotheses and a theoretical framework on the specifics, similarities, and differences for both study groups, and iii) clinical conclusions on specific psychosocial care needs of both groups.
NoteOpen access journal.
VersionFinal published version
SponsorsGerman Federal Ministry of Education and Research (BMBF) [01GY1711]
CollectionsUA Faculty Publications
- Palliative care experiences of adult cancer patients from ethnocultural groups: a qualitative systematic review protocol.
- Authors: Busolo D, Woodgate R
- Issue date: 2015 Jan
- Primary palliative Care in General Practice - study protocol of a three-stage mixed-methods organizational health services research study.
- Authors: Ewertowski H, Tetzlaff F, Stiel S, Schneider N, Jünger S
- Issue date: 2018 Jan 30
- Healthcare users' experiences of communicating with healthcare professionals about children who have life-limiting conditions: a qualitative systematic review protocol.
- Authors: Ekberg S, Bradford N, Herbert A, Danby S, Yates P
- Issue date: 2015 Nov
- The health and well-being of caregivers of children with cerebral palsy.
- Authors: Raina P, O'Donnell M, Rosenbaum P, Brehaut J, Walter SD, Russell D, Swinton M, Zhu B, Wood E
- Issue date: 2005 Jun
- A novel Family Dignity Intervention (FDI) for enhancing and informing holistic palliative care in Asia: study protocol for a randomized controlled trial.
- Authors: Ho AHY, Car J, Ho MR, Tan-Ho G, Choo PY, Patinadan PV, Chong PH, Ong WY, Fan G, Tan YP, Neimeyer RA, Chochinov HM
- Issue date: 2017 Dec 4