Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families: "I'm Tired, Overwhelmed, and Feel Like I'm Failing as a Mother"
AffiliationUniv Arizona, Dept Med, Div Dermatol
MetadataShow full item record
PublisherLIPPINCOTT WILLIAMS & WILKINS
CitationCapozza, K., Gadd, H., Kelley, K., Russell, S., Shi, V., & Schwartz, A. (2020). Insights From Caregivers on the Impact of Pediatric Atopic Dermatitis on Families:“I’m Tired, Overwhelmed, and Feel Like I’m Failing as a Mother”. Dermatitis, 31(3), 223-227.
RightsCopyright © 2020 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the American Contact Dermatitis Society. This is an open access article distributed under the Creative Commons Attribution License 4.0 (CC BY), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Collection InformationThis item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at firstname.lastname@example.org.
AbstractBackground The impact of pediatric atopic dermatitis (AD) on families is largely hidden from view, and AD is commonly misunderstood as a minor skin condition. Few studies have examined the full burden of AD from the family perspective. Objective The aim of the study was to assess the burden of AD on children and families using a caregiver-centered survey. Methods A 72-item anonymous online survey was posted on social media sites targeted to or composed of parents of children with AD. It explored the following 9 domains of impact: sleep, social isolation, time requirements, life decisions, family relationship dynamics, energy/fatigue, mental health impacts, and unmet treatment needs. Atopic dermatitis severity was reported by respondents using the Patient-Oriented Eczema Measure. Statistical analyses were conducted using R 3.6.0. Results Two hundred thirty-five individuals completed the survey during the 1-month period that it was promoted via social media. Caregivers reported frequent sleep disturbance, exhaustion, worry, and social isolation related to their child's AD. Conclusions Results highlight the need for psychosocial support and respite care for caregivers of children with AD.
NoteOpen access article
VersionFinal published version
Except where otherwise noted, this item's license is described as Copyright © 2020 The Author(s). Published by Wolters Kluwer Health, Inc. on behalf of the American Contact Dermatitis Society. This is an open access article distributed under the Creative Commons Attribution License 4.0 (CC BY), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
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