Quality of life and functional vision across pediatric eye conditions assessed using the PedEyeQ
AuthorLeske, David A
Hatt, Sarah R
Wernimont, Suzanne M
Castañeda, Yolanda S
Cheng-Patel, Christina S
Birch, Eileen E
Holmes, Jonathan M
AffiliationDepartment of Ophthalmology and Vision Science, University of Arizona
MetadataShow full item record
CitationLeske, D. A., Hatt, S. R., Wernimont, S. M., Castañeda, Y. S., Cheng-Patel, C. S., Liebermann, L., ... & Holmes, J. M. (2021). Quality of life and functional vision across pediatric eye conditions assessed using the PedEyeQ. Journal of American Association for Pediatric Ophthalmology and Strabismus.
JournalJournal of AAPOS
RightsCopyright © 2021 American Association for Pediatric Ophthalmology and Strabismus. Published by Elsevier Inc. All rights reserved.
Collection InformationThis item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at firstname.lastname@example.org.
AbstractPurpose: To evaluate eye-related quality of life (ER-QOL) and functional vision across a wide range of pediatric eye conditions, using the Pediatric Eye Questionnaires (PedEyeQ). Methods: A total of 1,037 children with an eye condition and 254 visually normal controls, across 0-4, 5-11, and 12-17 years age groups, completed the following questionnaires: Child PedEyeQ (Functional Vision, Bothered by Eyes/Vision, Social, Frustration/Worry domains), Proxy PedEyeQ (same domains plus Eye Care), and Parent PedEyeQ (Impact on Parent and Family, Worry about Child's Eye Condition, Worry about Child's Self-perception and Interactions, and Worry about Functional Vision domains). The primary eye condition was classified as amblyopia (n = 171), cataract (n = 99), cerebral visual impairment (CVI; n = 50), cornea (n = 20), eyelid (n = 35), glaucoma (n = 24), nystagmus (n = 57), orbital (n = 19), pupil/iris (n = 7), refractive error (n = 119), retina (n = 82), strabismus (n = 332), and uveitis (n = 22). Results: PedEyeQ domain scores (scaled 0-100) were significantly worse across eye conditions, compared with controls. Child PedEyeQ greatest differences were on the Bothered by Eyes/Vision domain (nystagmus 5-11 years, −26 points [95% CI, −39 to −12]; nystagmus 12-17 years, −45 [95% CI, −61 to −28]). Proxy PedEyeQ differences were greatest on Functional Vision (CVI 0-4 years, −45 [95% CI, −56 to −34]; CVI 5-11 years, −58 [95% CI, −72 to −43]; nystagmus 12-17 years, −50 [95% CI, −69 to −31]). Parent PedEyeQ differences were greatest on Worry about Child's Functional Vision (CVI 0-4 years, −64; 95% CI −77 to −50). Conclusions: The PedEyeQ detects reduced ER-QOL and functional vision across pediatric eye conditions, and across age groups, indicating its utility for clinical practice and clinical trials. © 2021 American Association for Pediatric Ophthalmology and Strabismus
Note12 month embargo; first published online 16 February 2021
VersionFinal accepted manuscript