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    “That's when the relationship shifted”: Relational and communicative turning points in Alzheimer's disease and related dementias

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    Author
    Cooper, R. Amanda
    Pitts, Margaret J.
    Harwood, Jake
    Affiliation
    Department of Communication, University of Arizona
    Issue Date
    2021-11-19
    Keywords
    Alzheimer's disease
    communication
    dementia
    marital relationships
    relational turning points
    
    Metadata
    Show full item record
    Publisher
    Wiley
    Citation
    Cooper, R. A., Pitts, M. J., & Harwood, J. (2021). “That’s when the relationship shifted”: Relational and communicative turning points in Alzheimer’s disease and related dementias. Personal Relationships.
    Journal
    Personal Relationships
    Rights
    © 2021 International Association for Relationship Research.
    Collection Information
    This item from the UA Faculty Publications collection is made available by the University of Arizona with support from the University of Arizona Libraries. If you have questions, please contact us at repository@u.library.arizona.edu.
    Abstract
    This study investigated the relational turning points experienced by caregiving spouses across the trajectory of Alzheimer's disease and related dementias. Data were collected using a modified version of the retrospective interviewing technique which facilitated close analysis of relational turning points and the role of communication in shaping and managing these turning points. Caregiving spouses described nine relational turning points across the disease trajectory. The turning points coalesced under four broad changes in the marital relationship: my spouse has dementia, from spouse to caregiver, my spouse is gone, and transcending dementia through love. Participants used five communication strategies to manage their relationships: having open and intimate conversations, avoiding confrontation, avoiding bringing attention to symptoms, engaging in daily conversations and activities, and communicating love and affection. Findings reveal the specific turning points that mark relational change across the disease trajectory and caregiving spouses' strategies to maintain their relationship through this prolonged end-of-life transition.
    Note
    12 month embargo; first published: 19 November 2021
    ISSN
    1350-4126
    EISSN
    1475-6811
    DOI
    10.1111/pere.12412
    Version
    Final accepted manuscript
    ae974a485f413a2113503eed53cd6c53
    10.1111/pere.12412
    Scopus Count
    Collections
    UA Faculty Publications

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